Patient-Perceived Usefulness of Online Electronic Medical Records: Employing Grounded Theory in the Development of Information and Communication Technologies for Use by Patients Living with Chronic Illness
- Affiliations of the authors: Departments of Health Policy, Management, and Evaluation (WJW, KJL) and Medicine (PGR), University of Toronto Faculty of Medicine and the Centre for Global e-Health Innovation, University Health Network (WJW, KJL, PGR), Toronto, Ontario, Canada
- Correspondence and reprints: Warren J. Winkelman, MD, MBA, Centre for Global e-Health Innovation, University Health Network, R. Fraser Elliott Building, 4th Floor, 190 Elizabeth Street, Toronto, Ontario, Canada M5G 2C4; e-mail: <w.winkelman{at}utoronto.ca>
- Received 4 October 2004
- Accepted 30 December 2004
Abstract
Objective Patient use of online electronic medical records (EMR) holds the potential to improve health outcomes. The purpose of this study is to discover how patients living with chronic inflammatory bowel disease (IBD) value Internet-based patient access to electronic patient records.
Design This was a qualitative, exploratory, descriptive study using in-depth interviews and focus groups of a total of 12 patients with IBD of at least one-year duration at University Health Network, a tertiary care center in Toronto, Ontario.
Results Four themes have been elucidated that comprise a theoretical framework of patient-perceived information and communication technology usefulness: promotion of a sense of illness ownership, of patient-driven communication, of personalized support, and of mutual trust.
Conclusions For patients with chronic IBD, simply providing access to electronic medical records has little usefulness on its own. Useful technology for patients with IBD is multifaceted, self-care promoting, and integrated into the patient's already existing health and psychosocial support infrastructure. The four identified themes can serve as focal points for the evaluation of information technology designed for patient use, thus providing a patient-centered framework for developers seeking to adapt existing EMR systems to patient access and use for the purposes of improving health care quality and health outcomes. Further studies in other populations are needed to enhance generalizability of the emergent theory.
Footnotes
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Preliminary results of this study were presented as a poster at the e-Health Conference in Victoria, British Columbia, May 2004.
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The authors thank the following researchers at the Centre for Global e-Health Innovation for their contributions to this research: Anjum Chagpar (prototype development and design, focus group facilitation), Colleen Reilly (questionnaire design, data collection, and preliminary data analysis), Jennifer Wong, Galina Privara, and Joanne Hohenadel (data collection).
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Supported by the Canadian Institutes for Health Research Health Informatics PhD Strategic Training Program and the School of Graduate Studies of University of Toronto (WJW).
