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J Am Med Inform Assoc 13:253-260 doi:10.1197/jamia.M2005
  • The Practice of Informatics

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Table 3

Examples of Data Elements for a Minimum Data Set for Human Immunodeficiency Virus Care

Data class Data Element Format and Units Range of Values
Demographics Birth date DD/MM/YYYY < 01/01/1900 to today's date
Birthplace:
 village/city Text Variable
 province Text From list
 country Text From list
Sex Coded Male, female
Tribe Text From list
History HIV-related diagnoses Coded: ICD-10 B20–B24, F02.4, R75, Z21
Comorbid diagnoses Coded: ICD-10 From ICD-10 codebook
Medications Coded: NDC, other system From available drug list
Treatment adherence Numeric: ordinal scale Likert scale (excellent to poor)
Semiquantitative Ranges: % of prescribed doses taken
Numeric: ordinal scale Depends on scale (e.g., Morisky)*
Numeric: pill count % of prescribed doses taken
Alcohol use Coded Use: yes, no; abuse: yes, no
Numeric: drinks/day 0 to >10
Numeric: scale score Depends on scale (e.g., AUDIT)†
WHO class Numeric: ordinal scale 1, 2, 3, or 4.
Physical examination Blood pressure, systolic Numeric: mm Hg 30 to >300
Blood pressure, diastolic Numeric: mm Hg 30 to >300
Heart rate Numeric: beats/minute 0 to >200
Weight Numeric: Kg 0.5 to >300
Temperature Numeric: °C 30–44
Various physical findings Coded: LOINC, other system From a local data dictionary‡
Laboratory: HIV specific HIV antibody Coded Positive, Negative
CD4 cell count Numeric: cells/mm3 0 to >1,000
CD8 cell count Numeric: cells/mm3 0 to >1,000
HIV viral load Numeric: Copies/mm3 0 to >1,000,000
Laboratory: HIV monitoring Alanine aminotransferase Numeric: IU/L 0 to >1,000
Albumin, serum Numeric: g/L 0–10
Hemoglobin, blood Numeric: g/L 0–25
Leukocytes, blood Numeric: cells/mm3 0 to >100,000
Platelets, blood Numeric: count/mm3 0 to >1,000,000
Lymphocytes Numeric: count/mm3 0 to >10,000
Creatinine Numeric: mg/dL 0.1 to >25
Imaging Chest x-ray findings Coded: LOINC, other system From a local data dictionary
EKG findings Coded: LOINC, other system From a local data dictionary
  • HIV = human immunodeficiency virus; AUDIT = Alcohol Use Disorders Identification Test; WHO = World Health Organization; EKG = electrocardiography; LOINC = Logical Observation Identifiers, Names, and Codes.

  • * See reference 32.

  • See reference 33.

  • See reference 12 and 22.

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