Table 5
Patient and Parent Feedback on Use of the Self-Report Tool
| Survey items (1=strongly agree, 5=strongly disagree) | Response (mean ± SD) |
| “I liked using this kind of questionnaire to give information about myself/my child.” | 2.2 ± 0.9 |
| “It was easy using the questionnaire to give information about myself/my child.” | 1.7 ± 0.9 |
| “I thought the questions about my/my child’s illness were too private.” | 3.7 ± 1.4 |
| “I thought the questions asking for addresses and locations were too private.” | 2.6 ± 1.4 |
| “I would be willing to give information about myself/my child again using this type of questionnaire.” | 2.4 ± 1.1 |
| “I was annoyed that the questionnaire asked medical questions that did not apply to me/my child.” | 3.8 ± 1.2 |
| “I did not like answering questions about addresses and places.” | 2.8 ± 1.4 |
| “I thought the questions asking about places were too difficult to answer.” | 4.0 ± 1.1 |
