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J Am Med Inform Assoc 15:723-728 doi:10.1197/jamia.M2793
  • Perspectives on Informatics

New Standards and Enhanced Utility for Family Health History Information in the Electronic Health Record: An Update from the American Health Information Community's Family Health History Multi-Stakeholder Workgroup

Table 2

Data Suggested as Optional for Family Health History Representation in the PHR/EHR

Data Category Data Elements
Individual

  • Place of birth

  • Date of birth

  • Multiple birth status (other than for proband)

  • Assigned gender

  • Consanguinity

  • Severity of disorders

  • Non-diagnosed health status

  • Partner status

  • Non-genetic laboratory results

  • Relevant environmental/social data

  • Context-sensitive data collection (e.g., age and gender specific questions only)
Family Representation of relationship qualities (e.g., estranged, close, household member)

  • PHR = personal health record; EHR = electronic health record.

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