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J Am Med Inform Assoc 2010;17:6-12 doi:10.1197/jamia.M3282
  • Perspectives on informatics
  • Application of information technology

Developing data content specifications for the Nationwide Health Information Network Trial Implementations

  1. Gilad J Kuperman1,
  2. Jeffrey S Blair2,
  3. Richard A Franck3,
  4. Savithri Devaraj4,
  5. Alexander F H Low5,
  6. for the NHIN Trial Implementations Core Services Content Working Group
  1. 1Inoperability Informatics, New York-Presbyterian Hospital, New York, New York, USA
  2. 2Lovelace Clinic Foundation and New Mexico Health Information Collaborative, Albuquerque, New Mexico, USA
  3. 3IBM Corporation, Armonk, New York, USA
  4. 4Computer Sciences Corporation, Falls Church, Virginia, USA
  5. 5New York eHealth Collaborative, New York, New York, USA
  1. Correspondence to G J Kuperman, Director, Interoperability Informatics, New York-Presbyterian Hospital. Chair, NYCLIX, Inc, 525 East 68th Street, Box 437, New York, NY 10065, USA; gkuperman{at}nyp.org
  • Received 24 May 2009
  • Accepted 13 October 2009

Abstract

In 2007, the Department of Health and Human Services commissioned the Nationwide Health Information Network (NHIN) Trial Implementations project to demonstrate the secure exchange of data among health information exchange organizations around the country. The project's Core Services Content Work Group (CSCWG) developed the content specifications for the project. The CSCWG developed content specifications for a summary patient record and for eight use cases that were implemented in demonstration events in 2008. The CSCWG developed tools to represent the specifications and facilitate implementation. The experience revealed that, in general, the Health Information Technology Standards Panel (HITSP) constructs served as a suitable starting point for the development of content specifications for interoperability. The ability to adhere to specified terminologies still presents significant challenges. This paper describes the process of developing the content specifications and lessons learned.

Footnotes

  • Some of the content that appears in this paper has been previously published on the Department of Health and Human Services National Health Information Network Resources website (see note at end of paper for further details).

  • Competing interests None.

  • Patient consent Not obtained.

  • Provenance and peer review Not commissioned; externally peer reviewed.

  • Some of the content that appears in this paper has been previously published on the Department of Health and Human Services National Health Information Network Resources website (http://healthit.hhs.gov/portal/server.pt?open=512&objID=1194&parentname=CommunityPage&parentid=2&mode=2&in_hi_userid=10741&cached=true). The US government, which was contractually obligated to publish the results, is the owner of the work on the website. The goal of this paper is to provide a synopsis of the work.

    Members of the Core Content Work Group (name of organization): Matt Weaver (CareSpark); Jamel Sparkes (CareSpark); Mohammed Pervaiz (Delaware Health Information Network); Omar Bouhaddou (Veterans Administration); Marie Swall (Social Security Administration); Mike McCoy (Indiana University, Regenstrief Institute); Lonnie Blevins (Indiana University, Regenstrief Institute); Paul Fu (Long Beach Network for Health); Sumit Nagpal (Med Virginia); Gerard Filicko (Med Virginia); Geoff Lawson (North Carolina Healthcare Information and Communications Alliance); Dave Perry (Lovelace Clinic Foundation); Dave Handren (Lovelace Clinic Foundation); Mark Butler (Lovelace Clinic Foundation); Shirley Fuller (Lovelace Clinic Foundation); Ben Stein (New York eHealth Collaborative); Chris Clark (West Virginia Health Information Network); Mazhar Shaik (West Virginia Health Information Network); Carla Lachecki (Wright State University); Betty Sydelko (Wright State University); Mary Crimmins (Wright State University); Kim Mills (HealthLINC, Bloomington Hospital); Mike Sullivan (HealthLINC, Bloomington Hospital); Kim Seonho (Community Health Information Collaborative); John Fraser (Community Health Information Collaborative); George Peredy (Kaiser Permanente); Joseph Columna (Kaiser Permanente); Rodney Cain (HealthBridge); Marty Larson (HealthBridge); Albert Edward (Cleveland Clinic Foundation); Robert Lemon (Cleveland Clinic Foundation); Sidney Brown (Cleveland Clinic Foundation).

    Liaisons from external organizations to the Core Content Work Group: Carol Bean (Office of the National Coordinator); Bob Yencha (Health Information Standards Technology Panel); Virginia Riehl (Certification Commission for Health Information Technology); Andrew McCaffrey (National Institute for Standards and Testing).

    Subject matter experts from the Use Case Work Groups: Sandy McLeaf (EHR Lab Results); Shirley Fuller (Emergency Responder); Dave Perry (Emergency Responder); Benson Chang (Medication Management); Jane McKnight (Consumer Empowerment—Registration and Medication History); Richard Steen (Consumer Empowerment—Consumer Access to Clinical Information); Beth Hurter (Consumer Empowerment—Consumer Access to Clinical information); Matt Berlin (Biosurveillance); David Dobbs (Biosurveillance); Nicholas Soulakis (Biosurveillance); Jennifer Puyenbroek (Biosurveillance); Marty Prahl (Social Security Release of Information); Debbie Somers (Social Security Release of Information); Aditya Naik (Social Security Release of Information); Randy Barrows (Quality).

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